Life with PDAC can feel overwhelming at times. But you are so much more than your diagnosis. Your voice matters. You deserve to be supported and cared for in ways that honor your needs.

Self-advocacy can help you take an active role in your care. Simply put, it’s speaking up, so your voice is heard. Becoming a self-advocate means you learn about your disease, talk openly with your health team, ask questions, and seek community support.

A serious diagnosis like PDAC can take a toll on your emotional well-being. Though you may feel isolated, you’re not alone in your cancer journey. Surround yourself with people who can offer understanding and support. Family members, friends, healthcare professionals, and support groups can help lift your spirits.

PDAC is the most common type of pancreatic cancer. It starts in cells that line the small tubes of your pancreas. PDAC is usually found in a later stage because it doesn’t typically cause symptoms early on.

It’s important to understand your diagnosis so you can advocate for yourself. The more you know, the more confident you can be about your care. More knowledge better equips you to ask questions and share your concerns.

Unfortunately, some people with PDAC report that doctors dismiss or minimize their symptoms, especially early in the disease. If this happens to you at any point, speak up. Keep a simple log of your symptoms and side effects. Include when and how often they occur. This can help your health team understand what’s going on.

Some simple ways to self-advocate at an appointment:

• Bring a prepared list of questions you want to ask.
• Share any symptoms or side effects you’ve had with your doctor.
• Take a friend or family with you to your appointment.
• Be honest when you answer your doctor’s questions.
• Ask your doctor to repeat or explain anything that’s not clear.

A second opinion is often a good idea, especially when you face a serious diagnosis like PDAC. Treatment plans can vary. Another doctor may offer a fresh perspective or a better therapy option. Your connection might also be something to consider. You may feel more comfortable and confident with a different provider.

Different professionals typically work as a group to help you manage your PDAC symptoms and treatments. This team may include a:

• Medical oncologist
• Gastroenterologist
• Surgeon
• Radiation oncologist
• Nurse
• Pain specialist
• Mental health specialist
• Dietitian
• Social worker

Having a strong care team can help you feel informed, supported, and confident. It’s OK to seek a better fit if your current team isn’t meeting your needs.

Though it can be difficult, honest communication with your loved ones is important. 
Share how you feel, what you need, and what concerns you have. That way, your family and friends can support you. You might just need someone to talk to. Or maybe a loved one can do your grocery shopping, watch your kids, or take you to your doctor’s appointments. Try to be specific about the type of help you need.

If you have PDAC, setting physical and emotional boundaries can reduce stress, protect your energy, and give you more control. A physical boundary might include saying no to activities that are too tiring. An emotional boundary could be stepping away from a relationship that’s draining you. Remember, you also have control over what information you want to share and what details you don’t feel comfortable talking about.

Each year, more than 60,000 people are diagnosed with PDAC. That means you’re not alone. Support groups can connect you with others who understand what you’re going through.  Sharing experiences, information, and encouragement can provide comfort and a sense of connection.

Support groups may be done in-person, virtually (online), or by telephone. Your doctor or someone on your care team can help connect you with a PDAC support group. Or you can try these online resources:

• Pancreatic Cancer Action Network (PanCAN)
• American Cancer Society
• CancerCare

A PDAC diagnosis can affect your mental and emotional health in several ways. It’s normal to feel sad, scared, or worried about the future. Treatments can also add stress to your daily life.

Talking with a loved one or professional can help you cope with these feelings. You may want to try therapy. Palliative care is another option. It’s a care approach that aims to improve quality of life for people living with serious illnesses, like PDAC.

Taking control of your health is a decision you make daily.  Simple steps might include:

• Educate yourself about PDAC and your treatment options.
• Speak up about any unusual symptoms you have.
• Take your medicines as directed.
• Eat nourishing foods, like fruits and veggies.
• Avoid alcohol and tobacco products.
• Practice healthy sleep habits.

Your identity and purpose extend far beyond your cancer diagnosis. Continue to make time for the people, activities, and experiences that bring you joy and connection. That might include exercise, travel, or just having fun with friends. Even during treatment, try to hold on to the parts of your life that help you feel grounded. Your strength might look different from one day to the next, and that’s OK.

If you have a question for your doctor, don’t be afraid to speak up. Here are some you want to ask:

• What is the stage of my cancer?
• Has the cancer spread?
• What treatments do you recommend? Why?
• Can you test my tumor for genetic markers?
• What side effects or symptoms might I experience?
• Would a clinical trial be a good idea?
• How can I find resources for support?