User Reviews for Mesalamine (Lialda, Pentasa, and others)

I was diagnosed with Crohn's about 2 years ago. I am completely a-symtematic, thank goodness. Doc put me on Asacol, couldn't tolerate it. Went on Lialda. Done well, except for much gas and shoulder pain, which seem to go together. I quit taking it a while ago, doc said gotta take something. Put me on Aprio, I stopped that after 4 days. Doc agreed to 1 lialda a day. Same effects, though. Had ultra sound, CT scan, chest x-ray, all showed clean. Other than that.........been taking things for gas, s... o far so good. Read More Read Less

20+ yrs of colitis using mesalamine, enemas, 5 asa drugs, dr suggested switching to lialda from asacol for ease of use (16 pills a day spaced out vs 4 pills once a day). After 3 days in hospital finally realized I am allergic to lialda but symptoms mimic uc so we didnt catch it until I almost died. SEVERE muscle pain, joint pain, 30+ times a day in bathroom. no matter what drug you are on always read possible side effects. even great gi doctors dont know your body like you do so pay attention to... your body and changes in your disease and make sure your doctor listens to you. a conversation with my docotr saved my life. Read More Read Less

I was diagnosed with UC in 1998. I had two more severe flare-ups in the first three years. I have been taking three 400mg tabs four times a day the entire time and have not had any more than an occasional spotty bleed, usually after a single spicy meal or a highly stressful situation. My last colonoscopy was given high marks, doc said 'whatever you're doing, keep it up'. My initial doc said NOT to quit smoking, and I haven't. He said go heavy on the red meat, not a problem, I love it. No fres... h veggies or fruit (take vitamins instead), no carbonized drinks (stir over ice or add water to kill fizz), no whole grain, no dairy. Basic steak, potatoes and white bread...and twelve Asacol every day...has kept me out of the hospital for over seven years now. Knock on wood, this routine keeps me from cramps, pain, and the E.R. Read More Read Less

I have colitis,ibs,gastritis and diverticula, i have tried asacol and pentasa ,they gave me worse stomach pain and diarrea. I have been on lialda for 3 weeks and it has given me terrible back,knee,shoulder and wrist pain!! At this point i am very frustrated and afraid to stop taking it because i dont want a flare up! It also makes me very tired!!

I have had UC for about 27 years; recently hospitalized with severe bleeding, renal failure, anemia, blood pressure loss. Got on asacol but too expensive; switched to lialda, 2 a day, no symptons except that I am losing a lot of hair. Anyone else with this side effect, and does it stop eventually?

It seems to work for me. Started it 7 months ago. I do have some hair loss. As far as other side effects...haven't noticed any. I take 2 pills 2.4 grams total daily. Never tried any other treatment. But with the hair loss I experience....I thought about changing. But it works and I feel semi-normal again. Trade-offs I guess

I've had chrons disease since I was 22 years old, diagnosed after the birth of my first child, over 30 years ago. The dr did not know exact what it was, and finally diagnosed Chrons by process of elimination. I've been on plenty of med, including prednisone, imuran last. I have been taking this med for 2 wks. I must say the side effects are horrible. I've never felt like this before. I may have a mild case, normal bathroom experiences. Please eat dairy, salad, raw veggies etc only in moder... ation. My neck and shoulders was hurting so bad, i thought it was my BP going crazy. However your coments has explained to me why my head is about to explode, the dizziness, the fatigue and near blackouts. This may work for other people, but i don't think this is the med for me. It appears it's helping a lot of people. Please pray for a cure, especially for the teens that get this dreadful disease Read More Read Less

Can not be in sun for prolonged periods of time. Skin is very sensitive and get round patchy spot on arm.

I have had UC all my life, but nothing was done for me. Four years ago, I got so bad, I had to quit my job. I have been on Lialda since Sept of this year. With Welchol,Entocort EC and Methscopolam. I have been a normal person, for the last four months. Thank you so much.

I was just diagnosed with Crohn's.I started Pentasa and had headaches for the first few days. Its a lot of pills to take and kind of inconvenient but so far its helped a little...

has helped to control te symptons very effectively,

I have been taking Lialda for mild to moderate Chrohn's for almost two years and it is the best I have felt in a very, very long time. If I miss a round I can feel the difference. This combined with Aciphex has changed my life.

Haven't been on any medication prior to starting Aprisio due to lack of insurance. Its only been 2 weeks/4pills a day and my diahhrea has increased tremendously-very watery,loose,expolsive, barely making it to the bathroom. The doctor recommended that I stop for a few days to hopefully give me some bowel rest and then I'm to restart the drug but at a lower dose (2 pills-daily) and see what happens. Not a big fan right now of this medication. I've lost a few pounds but it wasn't the way I had p... lanned to lose them. Read More Read Less

I have been taking Apriso for about six months and have not had any flareups. I was taking Entocort but my doctor had me switch to Apriso and am very satisfied. Apriso while expensive is about one third the price of Entocort. I read it is for use for up to 6 months but now I see many people have been taking it for much longer.

I have lymphocitic colitis. the med helps when it dissolves. often it goes thru me without dissolving. also affects my vision like a migraine would, sensitive to light

I started taking this medication a little over a week ago, I stopped taking as my symptoms seemed to become more severe, along with more blood loss, more stomach pain, adominal swelling, and a groggy, disoriented feeling. I have been off the med for 4 days now, and seem to be some better other than fatigue and nausea. I will not take this again.

lymphocitic colitus i still have diaherra, & have severejoint pain after being on this for 6 weeks, i am weak, tire easily & have lst more weight with loss of appetite.

I wouldn't use anything else. It's helped me immensely. I was diagnosed with ulcerative colitis in 1988 and since the drug become FDA approved, it's the only thing that has really worked for me.

glad to take the meds all at one time and not tied to a medication where i have to watch the clock all day